Parenting with Lupus and other Autoimmune Diseases

Here are some posts about lupus:

How Do You Have a Social Life with a Chronic Illness?

A reader reached out to me with this tricky question…”How do you have a social life between the kids and a chronic illness??”   It’s hard sometimes because we don’t want to disappoint our friends, family, and (more importantly) ourselves so we don’t know how to maintain this very delicate balance. I’ve asked myself this […]

Posted in Family, Friendship, Lupus, Uncategorized | Tagged , , , , | Leave a comment

Mom Mondays- Kimberly’s Story

I am so lucky today to introduce Mom Mondays! Each Monday I will be sharing an interview of a mother with a chronic illness and sharing it with all of you! My hope is that with time we will all have a chance to realize that we’re not nuts! We’re all going through a similar […]

Posted in Autoimmune Diseases, Lupus, Parenthood, Parenting, Uncategorized | Tagged , , , | 1 Comment

You Probably Got This From Me- A Parent’s Guilt

“I wonder where you got all of these things,” she would say. I was tired. I was sick. I didn’t care where or who the hell this disease came from. I have it. I must live with it. It is my heavy cross to bare all on my own. “You probably got it from your dad. […]

Posted in Autoimmune Diseases, Family, Health, Lupus, Parenting, Uncategorized | Tagged , , , , , , | 4 Comments

I’m the Mom…

I’m the sick mom. There. I said it. I’m the mom who has to spend days on the couch because she can’t move. Because of lupus. I’m the mom who has to ask friends and acquaintances for help so she can go to doctors appointments, medical testing, and, most recently, monthly IV chemotherapy infusions. Because […]

Posted in Autoimmune Diseases, Lupus, Parenthood, Parenting, Uncategorized | Tagged , , | 11 Comments

Dear Lupus

Dear Lupus, Hi…how are you doing? Oh that’s right…I know how you’re doing…you’re sitting right next to me like a family wolfdog always chewing on my shoes. You’re my constant companion using my organs, my nerves, and my joints as your chew toy. You’re my inner wolf howling for me to acknowledge you on my best […]

Posted in Autoimmune Diseases, Lupus, Uncategorized | Tagged , | 8 Comments

The Chronic Illness Grieving Cycle

Hi my love, Yeah you. The one that is Googling everything you can find about your new disease. You want to know what to expect. You want know how bad it’s going to get. You’re scared to know what it all means for your life. It’s ok. I understand what it’s like to be there. […]

Posted in Autoimmune Diseases, Health, Life, Lupus, Uncategorized | Tagged , , , | 6 Comments

A Lupie Protects Her Pack

“They’re testing me to see if I have lupus,” the text says. I stop what I was doing and grip tightly to the phone. “Why? What’s wrong? What are your symptoms?” I text back. She can’t hear the panic in my voice or the questions racing in my mind. Please, not another lupus diagnosis.  “Fatigue. […]

Posted in Autoimmune Diseases, Family, Friendship, Lupus, Uncategorized | Tagged , , , | 2 Comments

How to Turn Neuropathy into a Party Trick

I have an awesome party trick. It’s called “Neuropathy.” I can’t feel my hands. Or feet. Or various parts of my body. It’s like a freaky little side show I’ve got goin’ on and may I say, “Thank…you…lupus!” For those of you thinking, “What is this neuropathy you speak of?” Let me tell you a little […]

Posted in Autoimmune Diseases, Health, Lupus, Uncategorized | Tagged , , , , | 21 Comments

Learning to Accept Help

You need help. No, not mental help (ok, maybe that, but a little insanity in us makes us funny), but real physical, logistical help. Except if you’re like me and you’re more Type A then an apple at the beginning of the alphabet book then I already know that you’re not going to accept anything […]

Posted in Lupus, Parenthood | Tagged , , , , , | 20 Comments

Pretending to be Supermom with Lupus

One of the hardest parts about having lupus is learning how to act. It’s a gentle balance between acting fine so you don’t have people bothered that you’re sick all of the time and acting how you truly feel so you don’t have people thinking that what you’re going through is not difficult. Since I don’t […]

Posted in Autoimmune Diseases, Family, Health, Lupus, Parenthood, Uncategorized | Tagged , , , | 13 Comments

Here are some posts about parenting with other autoimmune diseases:

Mom Mondays- Kimberly’s Story

I am so lucky today to introduce Mom Mondays! Each Monday I will be sharing an interview of a mother with a chronic illness and sharing it with all of you! My hope is that with time we will all have a chance to realize that we’re not nuts! We’re all going through a similar […]

Posted in Autoimmune Diseases, Lupus, Parenthood, Parenting, Uncategorized | Tagged , , , | 1 Comment

You Probably Got This From Me- A Parent’s Guilt

“I wonder where you got all of these things,” she would say. I was tired. I was sick. I didn’t care where or who the hell this disease came from. I have it. I must live with it. It is my heavy cross to bare all on my own. “You probably got it from your dad. […]

Posted in Autoimmune Diseases, Family, Health, Lupus, Parenting, Uncategorized | Tagged , , , , , , | 4 Comments

I’m the Mom…

I’m the sick mom. There. I said it. I’m the mom who has to spend days on the couch because she can’t move. Because of lupus. I’m the mom who has to ask friends and acquaintances for help so she can go to doctors appointments, medical testing, and, most recently, monthly IV chemotherapy infusions. Because […]

Posted in Autoimmune Diseases, Lupus, Parenthood, Parenting, Uncategorized | Tagged , , | 11 Comments

Dear Lupus

Dear Lupus, Hi…how are you doing? Oh that’s right…I know how you’re doing…you’re sitting right next to me like a family wolfdog always chewing on my shoes. You’re my constant companion using my organs, my nerves, and my joints as your chew toy. You’re my inner wolf howling for me to acknowledge you on my best […]

Posted in Autoimmune Diseases, Lupus, Uncategorized | Tagged , | 8 Comments

The Chronic Illness Grieving Cycle

Hi my love, Yeah you. The one that is Googling everything you can find about your new disease. You want to know what to expect. You want know how bad it’s going to get. You’re scared to know what it all means for your life. It’s ok. I understand what it’s like to be there. […]

Posted in Autoimmune Diseases, Health, Life, Lupus, Uncategorized | Tagged , , , | 6 Comments

A Lupie Protects Her Pack

“They’re testing me to see if I have lupus,” the text says. I stop what I was doing and grip tightly to the phone. “Why? What’s wrong? What are your symptoms?” I text back. She can’t hear the panic in my voice or the questions racing in my mind. Please, not another lupus diagnosis.  “Fatigue. […]

Posted in Autoimmune Diseases, Family, Friendship, Lupus, Uncategorized | Tagged , , , | 2 Comments

How to Turn Neuropathy into a Party Trick

I have an awesome party trick. It’s called “Neuropathy.” I can’t feel my hands. Or feet. Or various parts of my body. It’s like a freaky little side show I’ve got goin’ on and may I say, “Thank…you…lupus!” For those of you thinking, “What is this neuropathy you speak of?” Let me tell you a little […]

Posted in Autoimmune Diseases, Health, Lupus, Uncategorized | Tagged , , , , | 21 Comments

Pretending to be Supermom with Lupus

One of the hardest parts about having lupus is learning how to act. It’s a gentle balance between acting fine so you don’t have people bothered that you’re sick all of the time and acting how you truly feel so you don’t have people thinking that what you’re going through is not difficult. Since I don’t […]

Posted in Autoimmune Diseases, Family, Health, Lupus, Parenthood, Uncategorized | Tagged , , , | 13 Comments

Kids are Understanding

When I was diagnosed with lupus in 2003 I had just graduated college, was in the process of moving half-way across the country, and I was planning a wedding. My future had been looking pretty bright and I was on top of my 22 year old game. That is, until I received those words from […]

Posted in Autoimmune Diseases, Family, Lupus, Parenthood, Parenting, Uncategorized | Tagged , , | 1 Comment

I’m Coming Out

Some of you may have noticed recently that suddenly the writer on this blog became “Farah Jasmine” and no longer “Sara Swati”. There’s a reason for that. I’m coming out like a cop coming out of donut shop. When I started this blog I knew it would be a place where I could write out […]

Posted in Autoimmune Diseases, Lupus, Self Help and Beauty, Uncategorized | Tagged , , , | 22 Comments
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